- My Autoimmune Rebuild Process in 2014
- Rebuilding with Humira and Rates of Inflammation
- Weight Fluctuations from 118lbs. to 150lbs.+
- Highlights with Photos (The Fun Stuff!)
2012 and 2013 were the most difficult years of my life (see my 2013 yearly review). 2014 was all about getting my life back together and rebuilding my autoimmune system. Before I begin, please watch this small clip from Forest Gump:
Like Lieutenant Dan in Forrest Gump, I was angry – angry at the doctors who would tell me to “take these pills” only to realize they were contributing to my condition. Angry that Chiropractors manipulated me too much (to this day I still cannot turn my neck prior to 2012). Angry at taking advice from the functional medicine doctors and holistic practitioners telling me they have the solution to my illness, take my money, and rarely ever follow-up. I was angry at God and the people who praised God as the ultimate healer only to be writhing in pain every night and never hear a word back from Him. And ultimately frustrated with the realization that the very medicine I wanted to get off in the beginning turns out to be the one thing I need to get my life back in order.
Then why did I suggest you watch a video clip of someone at peace? After fighting the “storm(s)” like Lieutenant Dan, I realized that we all have struggles and peace is determined by the way you perceive life. And for positive perception to begin, I had to let go of the expectation that to fix my autoimmune condition without medication. And rebuilding is the small wins you get like learning how to run the first time, being able to sit in a chair for more than 20 minutes or treading water (exercise) for that extra 10 seconds. It’s the people I met, the woman I fell in love with, and realizing who I am instead of trying to attain a status of what “you” perceive I should be. Letting go but not giving up is my new motto for 100 percent health.
My Steps on the Autoimmune Rebuild of 2014
While I let go and found new perceptions to life, I never stopped researching, experimenting and relearning. The best way I can describe my autoimmune rebuild is through this recent study from 39 experts in Autoimmunity. They concluded that most people develop autoimmune conditions from these major areas:
Repeatedly these experts suggested these specific tips on protecting your health and improving your immune system:
1. Clean up your diet by removing toxic and inflammatory foods.
My experience: Some of the inflammatory common foods I continue to avoid are processed foods (especially the ones I cannot pronounce or understand), breads / flours (the starches I tolerate are rice, potatoes and quinoa), soda and artificial sweetners. I eat low amounts of dairy, beans / legumes, alcohol, and tomato paste.
2. Eat a variety of organic whole foods.
My experience: If I could, I bought local. To do this I visited the farmer’s markets and talked to the farmers about what they grow and what pesticides they use. I now buy a wider range of non-USDA certified foods because the foods are still organic (or use organic practices) but aren’t USDA certified yet. This saved me money and helped me understand the local production of produce (i.e. what is best to buy each season).
3. Take care of your microbiome.
My experience: Your microbiome is basically the good and bad bacteria within your digestive system. By introducing probiotics, you increase the good bacteria which helps repair it. I continue taking water kefir on and off (currently doing it now) as it is easy to use and costs much less than buying probiotics.
4. Reduce your stress.
My experience: 2012 & 2013 I separated myself from almost anything that caused me stress as I could not cope with that along with my periods of depression and chronic pain. Since I was getting better by taking Humira (end of 2013), it allowed me the freedom to learn how to exercise (the 1st few months I had to relearn how to run again – it was quite a strange experience), socialize, and gain weight (at one point I weighed as little as 118lbs.), and not trying so hard to “fix” my chronic issues – all of which continues to keep my stress down. Throughout the months 90%+ of the symptoms went away and I developed a life again. This continued as long as I kept the mantra of letting go but not giving up.
My experience: I got to re-experience the amazing feeling of sleep without pain. If I continued to eat right (mostly by listening to my body and making sure my bowel movements / BM were in check), exercise and went to bed at a decent time, I got good sleep without chronic pain. I will mention, though, that I’ve gone through many revisions on which type of bed to use. I have a Sleep Number and can adjust but the settings are too dense/soft between the settings I use. Adding in foam toppers (currently at 1 1/2″) and mattress toppers have mostly helped, but it’s still a work in progress.
6. Exercise (but don’t overdo it!).
My experience: Yoga has helped tremendously and I do it almost everyday. The Wii Fit Plus works well as I never need to go anywhere to do Yoga and follow a routine. Swimming works well but I stopped going for awhile as the chlorine in the pool isn’t the best for health. For more intense workouts, I do push-ups with the Perfect Push-Up, pull-ups, various types of crunches / sit-ups (but doing this carefully), arm-band bicep curls, and exercises that use my body + gravity instead of weights. I also developed a Volleyball MeetUp every Wednesday that turned popular and has been great for me socially and with coordination.
7. Clean up your environment.
My experience: Besides changing out my air conditioner / handler, this will be one of my focuses in 2015. Although I’ve done pretty well with getting natural products for my skin / exterior, I still need to work on the cleaning products. I recently went to a seminar talking about all kinds of natural remedies and will be posting that experience soon.
8. Be your own advocate.
My experience: Besides this blog, I will be speaking more about my story at upcoming events, continue to help others with questions they may have (both on blog and in-person), and take health-related classes.
Autoimmune Rebuilding with Humira
None of the above would have been possible without Humira. As much as I tried to not use a biologic, I realized that my body cannot rebuild and heal (without severe consequences) with a dysfunctional autoimmune system (due to the environmental factors that contribute to autoimmunity – see graph above). Here are my inflammation blood test results from 2014 while on Humira compared to 2012 & 2013 (mostly without Humira):
The graph above shows two markers of inflammation. Normal SED rates range from 0 – 15 and CRP ranges from 0 – 4.9.
- SED Rate: Normal rates 0 – 15. In April 2012, highest was 101 (chronically killing me). My lowest was 4/4/14 which was a 2.
- CRP Rate: Normal rates 0 – 4.9. In April 2012, highest was around 142.8 (chronically killing me). As of 4/4/14, it is under 1 and I have never been that low.
- Fibrinogen Activity: Another marker of inflammation (not shown in graph). Normal Rates 193 – 507. 6/6/13 I was at 578 and on 4/4/14 which was a 203. I do not plan on taking more of the Fibrinogen tests as insurance companies are increasingly not accepting them.
2014 Humira Timeline
- April 2014 (Blood Test) – From November 2013 to February 2014 I used Humira as directed (every 2 weeks). March to May 2014 the longest I would go without a dosage was once per month. The results from April are my lowest in inflammation.
- August 2014 (Blood Test) – 5/30 – 9/2/14 I went off Humira for 3 months (94 days). On average, Humira will stay in your system 82.5 days as the average half life of Humira is 15 days X 5.5 (decay rate). The results were an elevated CRP of 6.3. Symptoms that started coming back were bloating, stiff neck (enough to start restricting my movement out of bed), weight decreasing to upper 140s, mucus in BM & and fissure was starting to occur. With these results and my doctor’s suggestions I went back on Humira but only taking one dosage per month.
- December 2014 (Blood Test) – 1st month (September) still had the most symptoms (but issues above mostly cleared up within 2-5 days) and 2nd month (October) I was almost symptom free. By the 3rd month (November) things did clear up and I was back to normal.
NOTE: One major issue I thought I had while on Humira was hives. It turned out that visitors to my home had brought bed bugs and after they left, I was bitten by them thus causing the hives and in no way was due to taking the Humira.
In 2013 I went underweight due to malabsorption in the body (classic symptom of Crohn’s disease) and my lowest weight was 118lbs. After taking the Humira to suppress my autoimmune system and continuing my diet, my weight went back up to my normal weight. The graph below shows from April 2013 – April 2014, my weight has mostly stayed in the 150lb. range and is today at 154lbs.
Highlights of the Autoimmune Rebuild 2014
Letting go but not giving up is my new motto for 100 percent health. My hope is to one day be off any medications but I accept this may take years. Until then I won’t give up on finding ways to fix my root causes and not just the symptoms.